Kidney health in West Yorkshire – Our ICB’s priority pathway

Dr Mark Wright and Dr Sunil DagaWe’ve been talking about kidney health in these blogs over the last few months. Last week NHS West Yorkshire Integrated Care Board (ICB) hosted a 'Renal Priority Pathway' meeting with the Yorkshire & Humber Kidney Network. It was a great opportunity to bring together commissioners from the ICB and NHSE, people who live with kidney disease and people who provide kidney services in primary and community care and hospitals in our area.

We heard about the national spotlight that is currently shining on kidney services. The NHS has said that a period of transformation will be needed to help them deliver what the population needs now and in the years ahead. It is widely predicted that chronic kidney disease (CKD) will become more common in the future. Currently, about four percent of us have lost enough kidney function for it to have an effect on our bodies. These effects are important because they increase our chances of heart attack, stroke and other disabling problems.

We heard about the work that is going on with some GP teams to help people get the best treatment for their kidney disease. We now have one West Yorkshire Guideline for the Management of CKD to help clinical decision making and support right care, at the right time by the right professional. The 'Minuteful Kidney' project sends home testing kits to eligible people so that they can find out whether they have protein in their urine. If they do, it can be a sign of CKD. The sooner this is picked up and treated, the less trouble it can cause. Around 1000 people have received the kits now. Of those that have completed them, a quarter were abnormal and 4% very abnormal. If one of these kits drops through your letterbox, please follow the instructions and do the test. It could have a huge impact on your health in the future.

We also heard about what happens when people have sudden and unexpected problems with their kidneys. This is known as acute kidney injury (AKI). We heard about the impact this has on our hospitals as well as the people that experience it. There is variation in the way this is handled across West Yorkshire. Preventing AKI and treating it better could help ease the pressure on frontline and critical care services.

We went on to discuss what happens when people lose their kidney function completely. Sometimes people choose to have dialysis or a kidney transplant when this happens. The number of people wanting dialysis has increased rapidly in the last couple of years. The dialysis services have had to adapt at speed. We heard that new dialysis facilities will be needed very soon to cope with the increasing demand. There’s more to do in terms of promoting kidney donation and transplantation as this would reduce the demand for and on dialysis services.

Rehana KosarIt was great to hear the real-life experiences of people with kidney disease. It very much helped us to understand what it feels like to have kidney failure and the impact it has on quality of life, including the restrictions necessary to stay as healthy as possible. It highlighted for all in attendance, how important it is to keep everyone’s kidneys as healthy as we can.

Read more about Rehana Kosar’s story and how it has empowered her to become a champion in her Muslim faith community to address the myths about kidney transplantation and become an advocate.

It was really good to see so many key people in the room together. The commissioning of dialysis services is likely to change next year. We expect that it will transfer from NHSE to our ICB. This creates a great opportunity to look at the whole kidney pathway in our area and work out how we can transform support for people with kidney disease in West Yorkshire. If you would like to be more involved, please contact: wyicb-wak.ltcpc.wy@nhs.net

Thank you for reading,
Mark and Sunil