
Hello, my name is George, and this blog is about my experience of living with and the changes in diabetes care and my hopes for the future.
I became ‘a diabetic’ in 1976 and was the third person on the island we lived on to do so, the other two being my younger brother and father. At that time, diagnosis always meant time in hospital, and I spent four weeks in Aberdeen Hospital being treated. I left there on two insulin injections a day, a very rigid diet, two glass syringes, a plastic holder for the syringe filled with surgical spirits with a spring in the bottom to protect the needle, two boxes of ten reusable needles, which were sent off for sharpening when blunt. And, best of all, a urine testing kit involving a test tube, dropper and tablets for urine glucose and ketones, most of which you were required to carry with you making meals out fraught with difficulty. Diet sheets showing food intake for the day with snacks at 11:00, 15:00 and before bed were restricted to 200 grams of carbohydrates and expected to be rigidly enforced with tight control maintained at all times. Diagnosis of ‘hypos’ (very low blood sugar levels) was tricky as it required either me or one of the people with me to recognise early warning signs as there were no home tests to check.
The ‘80s brought disposable needles, still orange but now sharp for each use and the first home blood testing strips. However, to save costs, the ‘Professor’ (my doctor) got us to cut these into three. Finger pricking was done with a needle, results were displayed by two different colours providing a reading when matched to the colour chart. To be fair, at the time, this was a massive shift, allowing the comfort of knowing what your blood was actually doing. In hospitals this was supported with the arrival of the HbA1c, and for the first time your doctor was accurately able to see whether the declarations in your log book matched your blood. Many people living with diabetes were moved from two to three injections a day with the introduction of long acting insulins - mine was Hypurin Lente.
The ‘90s brought a move to London and the start of my treatment at Guy’s Hospital, which continues to this day, and a period of relative stability with only minor changes in practice. Novopens arrived - these could be carried in your jacket pocket making mobility far easier. The glass syringes made way for single use disposables for those not keen on the pen. Needles were replaced with little finger stabbers and blood glucose testers did it all for you.
The last three decades have seen tremendous life-altering changes for people living with diabetes. DAFNE (structured education) taught you how you can start dosing for what you were eating rather than the other way around, and sweet things suddenly came back into our lives. Clinic appointments became far more variable depending on Hb1Ac results and testing for the complications associated with diabetes improved - twice a year at least half the people in the waiting room had eye drops in following diabetic eye clinic attendance. Medical technology such as tethered pumps arrived and although qualifying as eligible was difficult, we could be confident our diabetic care teams would battle to secure the necessary funding.
My first pump arrived 20 years ago. More recently continuous glucose monitoring (CGM) has spared my fingertips - I can now feel how sharp a knife is and also I can feel pain again when I have to test manually. The technology is evolving constantly: closed loop systems are now actively being rolled out to people and whist this does mean many people are walking around with various ‘tech’ attachments, which at one time were particularly noticeable at beaches and pools causing people to stare, now mostly they go unnoticed. Support is available to help address the consequences of unhealthy behaviours or control complications which in the past were regarded as life threating.
To put the advancements in diabetes care in perspective for you, at 16 I was unable to get life insurance when I started work as the underwriters didn’t expect me to live beyond 45 years! Happily, I have smashed that number and look forward to more years still with smaller closed loop systems which don’t require me to strip my skin every 2 or 3 days as I change the apparatus or pump. However, this is my life and I am living it.
And I am not doing it alone - attendance at hospital diabetes review clinics remains important to me. My hospital visits allow me to hear what is going on, chat with other people with diabetes on ways to improve my control and to continue to learn. The community care I get from my GP and diabetes nurse is excellent. It is a partnership.
And now, with my lived experience, I get to have a role in the spread and scale of access to diabetes medical technology for people across West Yorkshire. As a system, we won’t achieve this overnight. It won’t be low cost. However, it is life-changing - we can help more people to live well for more years and live longer with diabetes, one CGM or closed loop system at a time.
Thank you for reading,
George